CONSERVATIVE
New Forest East

INFECTED BLOOD COMPENSATION SCHEME - 18 June 2026

INFECTED BLOOD COMPENSATION SCHEME - 18 June 2026

Sir Julian Lewis: Like others before me, I pay tribute to the work of the hon. Member for Eltham and Chislehurst (Clive Efford). He is the driving force behind the all-party parliamentary group, which has done so much to highlight this terrible tragedy.

I was struck by what my right hon. Friend the Member for East Hampshire (Damian Hinds) said about having been alerted to this as far back as 2010. In my case, it was not quite so far back; it was 2015, but that is still more than a decade ago. I spoke in this House about the case of my constituent Lesley, which illustrated how long it often took for victims of contaminated blood to discover that they indeed had been infected. I pointed out that in 1970, she and her future husband had been involved in a serious road traffic accident, and she had to receive no fewer than 44 pints of blood. For many years, she knew nothing about the fact that she had been infected, although over those years she had many visits to GPs and hospitals, with numerous symptoms of illness, and considerable pain and suffering. It was only in 2014 that she finally discovered that she had been infected with hepatitis C by NHS contaminated blood.

Another example of a constituent who is in regular contact with me and my office is Stephen. He came to see me in August 2023. He was diagnosed as haemophiliac as an eight-year-old in the late 1960s. He thinks that he was infected with hepatitis C in 1974, which persisted for nearly 15 years before it eventually cleared from his system. He says that although it did not inhibit his professional life too badly, it had a deep impact on his personal life. He was married in 1986, and he was constantly having to have testing for fear every time that he had to have a transfusion that he might be infected. He was told in quite firm terms not to have children, and he said that he was often too scared to have treatment. Once he had quite a bad leg injury, which led to complications, and his fear of treatment led to him being effectively disabled for a period of time.

Stephen’s brother’s case was far worse, because he was one of about 400 chronic hepatitis C victims of this scandal. To this day, he can only effectively live on a day-to-day basis; he cannot plan because the complications of his infection mean that whether he will be able to do something will depend on how he is on the day in question.

In Portcullis House on Tuesday, we benefited from briefings from a number of organisations that are concerned with this scandal. I will briefly touch on a couple. One was a campaign about a condition of which I was previously unaware, called thalassaemia. This rare blood disorder requires sufferers to have a transfusion every three to four weeks – a blood transfusion every month. These people are at a very high risk of having been infected, and many of them were. These regular blood transfusions deposit more iron into the major organs, which, coupled with the hepatitis C virus with which they had been infected, maximises the prospect of their developing cirrhosis and liver cancer.

The drug interferon has been mentioned a couple of times already. I am old enough to remember when interferon was first regarded as a great breakthrough in the treatment of some cancers. Sadly, like so many medical interventions, it has side effects that can be harmful. Taken in combination with what these patients are also suffering from by way of infection and, in the case of thalassaemia sufferers, the build-up of iron, the interferon used in their cases also has complicating adverse effects. That was a point impressed on me at the briefing by the representative of the Terrence Higgins Trust, who pointed to the additional negative impact of treatment with interferon, which was for a significant time the only option available for HIV-positive patients.

I am indebted to the Haemophilia Society for briefing material that I hope will simply add to the excellent statement and laying of the groundwork in the opening speech so ably delivered by the hon. Member for Eltham and Chislehurst. The Haemophilia Society draws attention to one or two specific points that I would like to put before the House.

We all acknowledge that the infected blood community has fought valiantly for the truth for decades. We also accept that the Government are clearly committed to compensation following the inquiry. The debate now focuses on how to deliver that commitment and how to make sure that people are compensated without further delay and that the compensation is truly fair.

In this connection, I would like to make reference to a detailed opportunity I had virtually to participate in exchanges with senior people – in fact, the most senior people – at the Infected Blood Compensation Authority back in June last year. Again, that was at the initiative of the chairman of the APPG, the hon. Member for Eltham and Chislehurst. My participation was online, but I was able, as was he, to discuss all these matters with the interim chairman at the time, Sir Robert Francis; the chief executive, David Foley; and other key officials.

In particular, we were able to talk directly with members of IBCA’s cases team. I must say that I, for one, found them to be both compassionate and empathetic. I was very impressed with the calibre of people who are involved in this agency, and I am hopeful that if they are given the direction they need and the resources they require, they can succeed. I got the feeling that this is an organisation that really does want to help the people it has been set up to support, not an organisation that wants to be in any way obstructive. I hope everything can be done to encourage it. I know that it is operating in uncharted waters with a tragedy of this magnitude, but I hope it can succeed in overcoming the obstacles that have been causing the delays.

More than two years have passed since the Government accepted the need for compensation, but the majority of eligible people are still waiting to begin their claims. That includes infected people not previously on a support scheme and affected people – namely, the partners and family members of those who are sadly no longer with us. We have heard concern from the community that progress has slowed while IBCA works out how to grapple with these categories of claims in a process that it calls test and learn.

Every month of delay matters, because many infected and affected people are elderly or seriously ill. We would like to know from the Minister his latest assessment of the timescale by which IBCA will compensate each of the categories of claimant. IBCA’s latest figures show that just 30 affected people have been paid compensation so far. Over 14,000 affected people are waiting to start their claim. At what point does the Minister expect IBCA to truly start making a dent in those very large numbers? In particular, we would like to know what specific steps are being taken to accelerate compensation payments over the next 12 months.

Finally, there is an issue to do with claims that relate to the estates of those who died before the scheme commenced. Those who survived until the scheme commencement are rightly entitled to financial loss compensation from the date of their infection right up to the national age of healthy life expectancy that they should have had. In contrast, those who died before the scheme started have their financial loss calculated only from the date of their infection until the date of their death, which may have been a lot earlier than the normal expectation of a term of life that would have been their lot had this catastrophe not befallen them.

There can be no doubt that this creates a stark and unjust two-tier system. Those who died earlier will often have suffered the same or worse than those who died later, and the financial loss to their estate is clear, yet the Government’s position seems to be that those killed by their infections the soonest deserve less compensation and recognition than those who survived for longer. In many cases, this amounts to a very substantial reduction in compensation – potentially decades of lost earnings. Bereaved families should not receive lesser justice because their loved one died before the scheme was established. The result is that timing, not harm, is determining value, meaning that compensation depends on whether someone survived long enough to see the scheme introduced. As I said, this is about avoiding a two-tier compensation system.

In conclusion, I would like the Minister to explain how it can be in accordance with natural justice for those who died earlier due to their infection to receive less compensation than those who died later from a similar infection. Will the Government commit to reviewing their position on estate claims, to ensure families are not disadvantaged because their relative died earlier?

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[The Paymaster General and Minister for the Cabinet Office: (Nick Thomas-Symonds): … The right hon. Member for New Forest East asked about the differences between the compensation awarded to living and deceased infected people. I recognise that financial loss awards may be lower for awards to estates – I think that was his point—but that is because the future financial losses for estate claims are paid to the infected person’s dependants rather than the estate. …]